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# Down Syndrome Association of Greater St. Louis

We're Here Every Step of the Way

## Sitemaps

- [XML Sitemap](https://dsagsl.org/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [A Parent's Perspective on Dual Diagnosis](https://dsagsl.org/a-parents-perspective-on-dual-diagnosis/) - The Ponder family’s journey with discovering Shea has a dual diagnosis of Down syndrome and Autism by Jeff Ponder A dual diagnosis of Down syndrome and Autism (DS-ASD) sounds scary, but it can be as much pleasure as it is a hindrance. It’s a recent development in our society that a child can be diagnosed
- [Our DS-ASD Journey- by Mary Hart](https://dsagsl.org/ds-asd-journey-hart-family/) - Our DS-ASD Journey, by Mary Hart It’s been like night and day from 35 years ago and today. Back then, a child with Down syndrome just didn’t include autism as an additional diagnosis. Today, with increased awareness and improved diagnostics and knowledge, a dual diagnosis is acknowledged and accessible. At that time, there was even
- [Our Journey with Down Syndrome and Autism: The Missing Puzzle Piece](https://dsagsl.org/our-journey-missing-puzzle-piece/) - Written by Kristi Denner Receiving a dual diagnosis of Down syndrome and Autism Spectrum Disorder (DS-ASD) for our son didn’t necessarily shock us – in fact, it was as if we were finally being handed a puzzle piece that we knew we were missing but couldn’t find. I am grateful we pursued further testing toward
- [A Heart for Down Syndrome](https://dsagsl.org/heart-art/) - Decorate a heart as a thank you to Mr. Albert Pujols for his continued support of our community! We are putting together a special project for a very special supporter of the Down syndrome community, Mr. Albert Pujols. We are gathering hearts designed by community members for the project and we need your help! Download
- [Celiac Disease and Down syndrome](https://dsagsl.org/celiac-disease-and-down-syndrome/) - Approximately 1% to 3% of the general population is estimated to have celiac disease, but a recent study suggests that people with Down syndrome are six times more likely to develop celiac at some point during their lives.
- [Back to School Info & Navigating IEPs](https://dsagsl.org/school-and-iep/) - Here are some resources you and your family may find helpful as you transition out of the summertime schedule and into a new school year routine.
- [Assistive Technology and Down syndrome](https://dsagsl.org/assistive-technology/) - Individuals with Down syndrome can benefit greatly from using assistive technology in school, work, and other areas of life.
- [DSAGSL Ready 2 Work Program is BACK!](https://dsagsl.org/ready2work2022/) - The DSAGSL Pop Up Marketplace and Ready 2 Work Employment and Training Program is back! We are so excited to continue offering all the amazing employment programming that we’ve had so much success with, plus some exciting new additions! We are Open for Business! To start, we have re-opened the Pop-Up Marketplace. It has been
- [DS-ASD Dual Diagnosis- info and a parent's perspective](https://dsagsl.org/dual-diagnosis-blog-2022/) - My Thoughts & Journey with the Dual Diagnosis of Down Syndrome and Autism Spectrum Disorder By: Kim Youngberg Put a finger down if… you have a magnificent, extraordinary, & unique child you feel like the world’s best researcher, yet clueless at the same time there are days in your house that are amazingly great &
- [Meet the Newest Members of the DSAGSL Young Friends Board, Tiffany & Joseph!](https://dsagsl.org/tiffany-joseph/) - In Celebration of World Down Syndrome Day on March 21st, we interviewed two of the newest members of the Young Friends Board, Self-Advocates Joseph Niemeyer and Tiffany Prapaisilp. They told us about themselves, their favorite things, what they do in their free time, and why they wanted to become a part of DSAGSL and the
- [Making Plans for Summer 2022](https://dsagsl.org/sos-blog-summer2022/) - Summer camps and program fill up quickly, especially now with limited group sizes and staff shortages. So don’t delay! Take a look at the Recreation Council’s 2022 Summer Opportunities Guide for tons of summer fun ideas and activities. Qualified individuals with developmental disabilities can even apply for a Recreation Council voucher to assist with the fee
- [Mental Health & Down Syndrome](https://dsagsl.org/mental-health-down-syndrome/) - The ongoing pandemic has led to increases in anxiety, depression, and other mental health challenges for
- [Meet Max: DSAGSL's Spring 2021 Intern](https://dsagsl.org/meet-max-2021-intern/) - Meet Max: DSAGSL Spring 2021 Intern! My name is Max Schechter, and I am a graduate student in UMSL’s Master of Social Work program. One of the reasons why I chose to work with the DSA is because of the wonderful people I have met who have Down syndrome. Frequently, I describe DSA as a
- [The Impact of Improv Comedy on Performers with Down Syndrome](https://dsagsl.org/improv-and-down-syndrome/) - by DSAGSL Guest Writer, Jeff Ponder Improvisation is more than just laughs. It’s about working as part of a team and building ideas as a unit. It’s about inclusion. Theater educator Viola Spolin, known as the mother of improvisational theater, once said, “Everyone can act. Everyone can improvise.” Nobody knows that better than Andy Sloey,
- [DSAGSL Family Provides Dolls with Down syndrome to Area Schools](https://dsagsl.org/family-provides-dolls-to-schools/) - Paige Carlson, mother to Cooper who has Down syndrome, has a heartwarming story about a gift they received, that inspired Paige and her family to do something special for their community. “Cooper received the sweetest doll that resembled a child with Down syndrome as a gift. It was so sweet and meaningful for our family.
- [National Down Syndrome Adoption Network (NDSAN)](https://dsagsl.org/ndsan/) - The NDSAN needs your help! They are looking to add more families to their registry who are open to adopting an older child, as this has become an increased need.
- [What I'm Up To & What I Miss- by Kaitlyn Trower](https://dsagsl.org/kaitlyn-trower-blog-april-2020/) - What I’m Up To & What I Miss- by Kaitlyn Trower WHAT I MISS -going to my classes at Meramec-going to work at Pasta House-Meeting in person with my reading dinner group on Thursday-all my classes at the Wellness Center-hugging my friends-hugs from my two grandmas I am a little sad and a little scared. Mom
- [Staying Home & Staying Safe? Me, too! by Grace Mehan](https://dsagsl.org/staying-home-staying-safe-by-grace-mehan/) - Staying Home and Staying Safe? Me, too! by Grace Mehan, DSAGSL Self-Advocate of the Year 2020 The world is very different now. The Coronavirus has changed the way we live. We are all affected. We are all staying home. Here is what I’m missing in my life: I haven’t been going to my jobs in
- [#DanceForDownSyndrome](https://dsagsl.org/dancefordownsyndrome/) - We are Dancing for Down Syndrome! There’s a new social media challenge and it’s all about DANCING! In the video below, Anna and her friend show us the dance moves for this challenge to the song, I Wanna Dance With Somebody by Whitney Houston. Way to go Anna, your dance is great!! Once you learn
- [World Down Syndrome Day 2020](https://dsagsl.org/world-down-syndrome-day-2020/) - Video from www.worlddownsyndromeday2.org How Do You Celebrate World Down Syndrome Day? Every day is a great day to celebrate Down syndrome. However, just because we may not always remember to, March 21 is considered World Down Syndrome Day, which has been officially observed by the United Nations since 2012. Consider this your guide to how
- [Hooray!  Welcome Don to the Team!](https://dsagsl.org/welcome-don/) - Please Welcome DSAGSL’s New Social Enterprise Manger, Don Williams! Don joined the DSAGSL team in late January. He brings 30 years of retail and business development experience to DSAGSL’s growing Pop Up Snack Shop Employment Program. Prior to joining the Down Syndrome Association of Greater St. Louis, Don was involved with one of DSAGSL’s other
- [DSAGSL <3 Utopia Entertainment](https://dsagsl.org/dsagsl-and-utopia/) - DSAGSL <3 Utopia Entertainment by Director of Special Events, Amber McWilliams Grateful doesn’t begin to describe our relationship with Utopia Entertainment. From our first meeting, they went 100 mph to ensure that everything we needed was taken care of for our event. It was a transformational year for us, combining two of our events and
- [New Programs Intern, Katrina](https://dsagsl.org/new-programs-intern-katrina/) - New Programs Intern, Katrina Hey everyone! My name is Katrina and I’m lucky enough to be a Programs Intern for this hardworking team. As a brief introduction, I am a Captain in the United States Air Force and kicking off my military transition with DSAGSL through the DoD Skillbridge program. With this transition I aim
- [National Institutes of Health Receives an Increase in Funding for Down Syndrome Research](https://dsagsl.org/national-institutes-of-health-receives-an-increase-in-funding-for-down-syndrome-research/) - A historic 65% increase in funding for Down syndrome research at the National Institutes of Health (NIH) was announced for the 2018 fiscal year. The decision to increase funding comes from the Congress’ House Labor and Health and Services Appropriations Subcommittee. This fantastic news shows that Congress recognizes the importance and benefits of Down syndrome
- [Superheroes Who Look Like Us](https://dsagsl.org/elementor-3146/) - Superheroes Who Look Like Us The DSAGSL was given an exciting opportunity to contribute to a recent story published online discussing the role of comics and superheroes in the lives of children with disabilities. The story, written by Brent Moeshlin for Quality Comix, was released on Oct 16, 2019. Moeshlin includes profiles of several special
- [Young Friends Board Member Allie - from Kansas City to St. Louis](https://dsagsl.org/young-friends-allie/) - Allie Andrews’ job took her from college, to Kansas City, and all the way to St. Louis, but all that traveling never stopped Allie from remaining an active member in the Down syndrome community. Here is the story of Allie’s involvement with the Down syndrome community and how she became a member of the Young
- [Welcome Maddie, Our Newest Intern!](https://dsagsl.org/welcome-maddie-our-newest-intern/) - A big welcome to our newest office intern, Maddie!! Maddie will be helping out around the office this doing a variety of different tasks. She is a recent graduate from Bellville East High School and will start work at the Cookie Dough Co. very soon. In her free time she enjoys hanging out with friends and
- [Meet Morgen: Our Communications Intern!](https://dsagsl.org/elementor-2657/) - Meet Morgen: Our Communications Intern! Hello! My name is Morgen Filla, I am currently the Marketing and Communications intern at the Down Syndrome Association of Greater St. Louis for the summer. After my internship I will begin my journey toward a Master’s degree in school counseling this fall at Missouri Baptist University. While in graduate
- [Kim's Service is Almost Complete!](https://dsagsl.org/kims-service-is-almost-complete/) - Kim’s Service is Almost Complete! Hello all! My name is Kim Dowling and I am a MSW intern at the DSAGSL office. I have a brother/ best friend named Sean who has Down syndrome and he brings an unlimited amount of happiness and joy to my life. Sean loves to laugh, sing, dance, and make
- [Meet Summer Programs Intern, Ally!](https://dsagsl.org/ally-gischer-intern/) - Meet Ally: Our Newest Program Intern! Hi! My name is Ally, and I am the new Programs Intern for the summer! I will be starting my senior year at Missouri Baptist University this coming fall. I am a Behavioral Science major and also a college softball player. Working at DSAGSL has already been a great
- [Meet Kim: Our Social Work Practicum Student](https://dsagsl.org/meet-kim-our-social-work-practicum-student/) - Meet Kim: Our Social Work Practicum Student My name is Kim Dowling and I attend the University of Missouri- Saint Louis. I will be finishing my Master of Social Work degree and Nonprofit Management and Leadership certification this summer. I am passionate about advocating for individuals who have developmental disabilities. I have a brother, Sean,
- [Meet Christian: Our Family Support Intern](https://dsagsl.org/meet-christian-our-family-support-intern/) - Meet Christian: Our Family Support Intern My name is Christian Adams and I am currently a senior at the University of Missouri-Saint Louis. My role as an intern at the Down Syndrome Association of Greater St. Louis includes family support and assisting with marketing and communications. Christy Klaus and I create new parent packets and
- [Meet Leah: Our Communications Intern](https://dsagsl.org/meet-leah-our-communications-intern/) - Meet Leah: Our Communications Intern Hi there! My name is Leah Vitelli and I’m the Communications intern at DSAGSL for this spring! I’m a part time student at UMSL as well as a full time momma to my one year old son, Nicholas. I’m set to graduate December of this year and I’m so excited
- [Meet Abbey: Our Program Intern](https://dsagsl.org/meet-abbey-our-program-intern/) - Meet Abbey: Our Programs Intern I’m Abbey Simon and I’m the Program’s Intern at DSAGSL! I am currently a sophomore at Saint Louis University, with a major in Communication Sciences and Disorders and a minor in Special Education and plan on pursuing my masters in Speech Pathology. I am very passionate about making sure every
- [Board Member Robert & His Cousin Kyle](https://dsagsl.org/board-member-robert-his-cousin-kyle/) - Rob Berger has been a DSA board member since 2017 and today he shares the story of how he became involved with the DSAGSL.
- [Abeo's Horseback Riding Adventure](https://dsagsl.org/abeos-horseback-adventure/) - Abeo is a self-advocate who works at the DSAGSL offices and has a great story to share about her love for horses. Here is her story:
- [Welcome Karla to the DSAGSL Team!](https://dsagsl.org/welcome-karla-to-the-dsagsl-team/) - As the newest member of the team, I will be assisting the DSAGSL team with specific needs and social media as well.
- [Meet Claire: DSAGSL Spring '24 Intern](https://dsagsl.org/meet-claire-spring24-intern/) - My name is Claire Carden and I’m thrilled to be the Communications Intern for Spring 2024 here at the DSAGSL! I am a junior at Saint Louis University with a major in Media and Journalism Communications and a minor in Psychology. Interning at the DSAGSL is so special because I get to enhance my skill

## Pages

- [HOME](https://dsagsl.org/) - We’re Here Every Step of the Way The Down Syndrome Association of Greater St. Louis serves, supports, and celebrates the lives of individuals with Down syndrome and their families, through every stage of life. GET INVOLVED Facebook Instagram Youtube DSAGSL HAS MOVED! The DSAGSL headquarters has moved one block away to 1201 Hanley Industrial Ct. Suite
- [Teens & Adults](https://dsagsl.org/programs/teens-adults/) - Teen & Adult Programs It’s important individuals with Down syndrome remain active in the community through their school years and beyond. DSAGSL offers several direct programs for teens & adults with Down syndrome, both online and in person. We utilize Zoom, Facebook, and YouTube for our virtual programming, and our multi-purpose room at the DSAGSL
- [DSAGSL Trivia Night](https://dsagsl.org/events/trivia/) - DSAGSL Trivia Fundraiser This Trivia Night puts the FUN in fundraising! Join us as we celebrate the Down Syndrome Association’s 50th Anniversary! As one of the largest trivia events in the area, you won’t want to miss the games, entertainment, food, amazing auction, and of course, TRIVIA! 15th Annual DSAGSL Trivia Night & DSA 50th
- [For Healthcare Professionals](https://dsagsl.org/resources/healthcare-professionals/) - For Healthcare Professionals Thank you for visiting the Healthcare Professionals page, and for all you do for patients with Down syndrome and their families. On this page you can request informational packets about Down syndrome that can be given to families in your office, find our HIPPA-compliant referral form, as well current research and resources
- [EVENTS](https://dsagsl.org/events/) - EVENTS Step Up for Down Syndrome Step Up for Down Syndrome is the largest celebration of Down syndrome in the region. Donations from this event provide vital and life-changing programming to over 2,000 individuals with Down syndrome and their families! Participants start a team, raise money, and earn amazing prizes like tickets to see the
- [Family Events](https://dsagsl.org/events/family-events/) - Family Events The DSAGSL plans several family events each year for all ages. Make sure to RSVP so we know you are coming and can plan to have enough food and supplies for everyone. We look forward to seeing you at an event soon! Community Partners Bowling Event Saturday, October 18 from 9:30-11:30am at Tropicana Lanes
- [Lifelong Learning Program Payment Form](https://dsagsl.org/forms/life-long-learning-payment-form/) - Lifelong Learning Program Payment Form Please enter the participant name in the “Contact Information” section. Thank you! We look forward to seeing you soon! Scholarship Form
- [Southeast Missouri](https://dsagsl.org/southeast-missouri/) - Southeast Missouri Programs & Services The Down Syndrome Association of Greater St. Louis’ service area includes the Southern Missouri region. Families that live in Ste. Genevieve, Perryville, Cape Girardeau, Sikeston, Jackson, and surrounding areas can count on the support of the DSAGSL. Our Southeast Missouri Program Coordinator joined the DSAGSL team in July 2023 and
- [Volunteer](https://dsagsl.org/get-involved/volunteer/) - Volunteer DSAGSL simply could not provide the programs and services to the nearly 2000 individuals with Down syndrome in the area and their families, without the help of volunteers. DSAGSL offers several opportunities to volunteer throughout the year including special event support, as well as program help. Please feel free to browse the list of
- [Ready 2 Work Employment](https://dsagsl.org/programs/employment/) - Employment Programs Our Ready 2 Work Program helps adults with Down syndrome address the challenges they face when looking for community-based employment. Career Solutions Training Career Solutions is a preparatory program designed to equip adults with essential knowledge and practical skills. Participants engage in group-based learning and discussions, complemented by self-study activities and hands-on practice to reinforce
- [School-Aged](https://dsagsl.org/programs/school-aged/) - Programs for School-Aged The DSAGSL is the only agency in the region serving individuals with Down syndrome, and their families, through the entire lifespan. This includes school-aged individuals with Down syndrome. We offer programs related to education, as well as recreation, socialization, and important life skills. Ukulele Club Thje next session begins on September 11,
- [En Español](https://dsagsl.org/resources/espanol/) - Recursos sobre el síndrome de Down en español Bienvenidas Familias Hemos recopilado recursos y enlaces que pueden resultarle útiles. A continuación se encuentran enlaces a nuestros recursos en línea, paquetes de información sobre temas importantes e información sobre otras organizaciones. Si desea programar una cita y necesita la presencia de un traductor, envíe un correo
- [Workshops](https://dsagsl.org/workshops/) - Workshops These workshops vary in topic and are sometimes in partnership with other organizations. If you have an idea for a workshop, let us know! info@dsagsl.org or 314-961-2504 Adult Healthcare Conference Saturday, October 4th from 10am-3pm at DSAGSL in Brentwood Healthcare professionals from multiple disciplines will lead workshops on topics such as Global Foundation’s Adult
- [DSAGSL Newsletter](https://dsagsl.org/newsletters/) - DSAGSL Newsletter Family Connections Newsletter The Family Connections Newsletter is mailed out to our membership 2-3 times each year. If you’d like to sign up to be a DSAGSL member, visit our sign up page! It’s super easy and completely free! Family Connections Newsletter Fall 2025 Family Connections Newsletter Spring 2025 Family Connections Newsletter Fall
- [Adult Healthcare Conference Registration Form](https://dsagsl.org/forms/healthcare-conference-registration/) - Adult Healthcare Conference Registration Saturday, October 4th | 10am-3pm DSAGSL Office – 1201 Hanley Industrial Ct, Suite A. Brentwood, MO 63144 Guest Speakers will present on topics including: The Global Down Syndrome Foundation’s Adult Healthcare Guidelines and the importance of building a team of healthcare professionals Get on the Brain Train – How to keep
- [Virtual Programs](https://dsagsl.org/virtual-programs/) - Virtual Programming Zoom Programs For your safety, we have added security measures for Zoom. You will be allowed access to the meeting if your device displays your full name. Thank you for your understanding. IMPROV with Andi! | Wednesdays @ 10:00am Please scroll down to view the Programs Schedule for all the dates! Zoom Link | Participants
- [Walk in the Ballpark](https://dsagsl.org/events/walk-in-the-park/) - Walk in the Ballpark Why do we walk? Join us and you’ll see! Walk in the Ballpark is an annual DSAGSL tradition that brings together families and friends for a day of raising awareness, cheering on the Cardinals, and an overall fun experience that fills the stadium with excitement. Join the nearly 3,000 friends and
- [Parent & Caregiver Events](https://dsagsl.org/events/parent-caregiver/) - Parent & Caregiver Events Welcome parents and caregivers! DSAGSL is here to help you build community and make connections with one another. There is so much information to gather, implement, advocate… it’s important to have some downtime, too! We hope to see you at an event soon. Moms Night Out : DIY Doormats Friday, September
- [Moms Night Paid Event Form](https://dsagsl.org/forms/moms-night/) - Moms Night Out: Jewelry Making Class Please enter the parent/caregiver/head of household in the “Contact Information” section. Thank you! We look forward to seeing you soon! Scholarship Form
- [Early Childhood](https://dsagsl.org/programs/early-childhood/) - Early Childhood Programs This is a critical stage in the development of children with Down syndrome who may need extra therapies and interventions. These programs are aimed at providing access to information and resources, networking with other families that have children in similar developmental stages, as well as meeting the needs of our community. Small
- [Bowling Registration Form](https://dsagsl.org/forms/bowling-stl/) - Down Syndrome Community Partners Bowling Event Saturday, October 18, 2025 from 9:30-11:30am Tropicana Lanes – 7960 Clayton Rd, St. Louis, MO 63117 Join your favorite organizations for bowling, doughnuts, and FUN! Includes 2 hours of bowling, shoes, and snacks. Lanes can have up to 6 bowlers! This FREE EVENT is hosted by the Down Syndrome
- [Valued Partners](https://dsagsl.org/partnerships/) - Valued Partners The Down Syndrome Association of Greater St. Louis is grateful for all of our extraordinary donors and sponsors. The Valued Partners below have committed to our mission financially or in-kind at a $2,750 level or above this year. Thanks to all of our contributors, the DSAGSL is able to serve, support, and celebrate the lives of over 2,000 individuals with Down syndrome and their families in Eastern Missouri and Southern Illinois every year.
- [Staff & Board of Directors](https://dsagsl.org/about/staff-and-board/) - Staff & Board of Directors DSAGSL STAFF Erin Suelmann, Executive Directorerin@dsagsl.org Katie Adams,Grants Administratorkatie@dsagsl.org Makini Anwisye, Adult Services Coordinatormakini@dsagsl.org Haidee Barosso, Bilingual Outreach Specialist Haidee@dsagsl.org Abigail Beckord Bosslet, Director of Marketing & Community Engagementabigail@dsagsl.org Emily Fisher, Director of Special Eventsemily@dsagsl.org Lindsey Hawkins, Office Assistant & Community Ambassadorinfo@dsagsl.org Linda Kamphorst,Director of Family Supportlinda@dsagsl.org Christy Klaus,Family
- [For Educators](https://dsagsl.org/resources/for-educators/) - For Educators Resources for Educators Education Specialist Program Advocacy & Awareness Presentations Request an Awareness Packet NDSC & DSAGSL Educators Conference Saturday, November 8, 2025 | 8am-3pm DSAGSL Office – 1201 Hanley Industrial Ct, Suite A, Brentwood, MO 63144 Educators and support professionals are invited to this full-day conference brought to by DSAGSL and the
- [Small Steps Summer Camp Form](https://dsagsl.org/forms/small-steps-stl-summer/) - Small Steps Summer Camp in Brentwood Monday, July 28th – Thursday, July 31st Join us for Small Steps Summer Camp 2025 at the DSAGSL office in Brentwood! This therapeutic play group is for children with Down syndrome ages 3-8 years old. Parents can drop off or stay and enjoy the activities. Each session will start
- [GET INVOLVED](https://dsagsl.org/get-involved/) - GET INVOLVED Thank you so much for your interest in supporting DSAGSL! We are so fortunate to have so many generous people in our community that want to help. The great news is, there are many of ways to get involved! If you have any questions, please don’t hesitate to reach out! info@dsagsl.org or 314-961-2504
- [About DSAGSL](https://dsagsl.org/about/dsagsl/) - About DSAGSL Mission, Vision, and Values History Financials Diversity, Equity, & Inclusion Staff & Board of Directors Office Hours & Location Contact Us Get Involved Privacy Policy Job Opportunities 3 Year Strategic Plan Mission, Vision, and Values Our Mission: The mission of the Down Syndrome Association of Greater St. Louis is to serve, support, and
- [Older Adults](https://dsagsl.org/programs/older-adults/) - Programs for Older Adults Fortunately, individuals with Down syndrome are living longer lives than ever before. Unfortunately, the services these individuals need and deserve aren’t always readily available. The Down Syndrome Association of Greater St. Louis is dedicated to working with families and support providers to identify and address the needs of our Active Aging
- [Jr. Board](https://dsagsl.org/get-involved/jr-board/) - Junior Board The Junior Board is a group of young professionals that support DSAGSL’s program and fundraising efforts. It’s an opportunity to gain experience in a leadership role, meet new people, and support the Down syndrome community. The Junior Board meets once a month on Zoom. Each member serves a minimum of one (1) two-year
- [Resources by Topic](https://dsagsl.org/resources/resources-by-topic/) - Resources by Topic DSAGSL Video Series DSAGSL Adult Services Toolkit Informational Packets & Links Facebook Groups Welcome Families & Caregivers We’ve searched far and wide and compiled resources and links that you may find helpful. Below are links to resources regarding health, safety, therapies, grief, creating a secure future, other important area agencies, and much
- [Birdies & Bass Golf](https://dsagsl.org/events/golf/) - Birdies & Bass Golf Birdies & Bass – Our Signature Golf Event & Fishing Derby Monday, May 19, 2025 Persimmon Woods Golf Club & Lakes 6401 Weldon Springs Road, Weldon Springs, MO 63314 Event Registration Sponsorship Information Schedule of Events 7:30am – Fishing Registration Begins 8:30am – 9:45am – Annual Fishing Derby 10:15am – Fishing Derby Award
- [Programs Registration Form](https://dsagsl.org/forms/programs-registration/) - Programs Registration Form Please enter the individual with Down syndrome participating in the program under the “Contact Information” section. The parent/guardian information can be entered in the “Additional Information” section. Thank you! You can find the Lifelong Learning payment page here. For Fusion Friday, please register below and then visit the payment page here. Please contact Andi@dsagsl.org
- [Advocacy & Awareness](https://dsagsl.org/programs/advocacy-awareness/) - Advocacy & Awareness The Down Syndrome Association of Greater St. Louis aims to benefit the lives of individuals with Down syndrome in many ways. One of those way is through public awareness and advocacy. DSAGSL hosts events throughout the year that raise awareness in the community by celebrating Down syndrome. We walk, we play, we
- [Community Groups](https://dsagsl.org/resources/community-groups/) - Community Groups Community Groups provide information, resources, and support to families connected to the group. They groups are based on location, age, relationship to the person with Down syndrome, culture, and/or native language. The groups run independently of each other, and are supported by the Down Syndrome Association of Greater St. Louis. Each of our
- [Run for 21](https://dsagsl.org/events/run-for-21/) - Run for 21 DO SOMETHING EXTRA & RUN FOR 21 Sunday, June 8, 2025 7:00-7:45am | Day Of Registration & Race Packet Pickup 8:00am | Shotgun Start After Race-9:30am | All You Can Eat Pancake Breakfast 9:00am-12:30pm | Step Up Celebration In honor of the third copy of the twenty-first chromosome, we invite you to
- [Social Activities](https://dsagsl.org/social-activities/) - Social Activities Connect with friends of all abilities at these great social events. Some of the activities and events are for school-aged kiddos, some are for teens and adults, and ALL are inclusive and fun! Teen Socials Three Sessions in 2025 | Saturdays from 1:00-3:00pm | Feb 8, May 10, and Sept 13 DSAGSL Office, 1201A
- [Video Series](https://dsagsl.org/resources/video-series/) - Video Series Workshops The Scoop More DSAGSL Videos In the News Follow us on social media for more videos! Facebook-f Instagram Youtube DSAGSL creates video workshops on various topics as a resource to anyone wanting to learn more the variety of topics we cover. Workshops include Down syndrome 101, strategies for managing behaviors, potty training,
- [Volunteer Registration](https://dsagsl.org/forms/volunteer-registration/) - Volunteer Registration Please fill out the form below to register to volunteer at an event or program. Once registered, DSAGSL will contact you by email about 1 week before the event with details. In the Comments Box, please include any person or group you will be volunteering with, the month you are volunteering if signing up
- [Free Family Event Form](https://dsagsl.org/forms/free-family-events/) - Family Events RSVP Please enter the parent/caregiver/head of household in the “Contact Information” section. In the “Comments” box, please enter the name of your loved one with Down syndrome. Thank you! We look forward to seeing you soon!
- [Free Social Activities Form](https://dsagsl.org/forms/social-activities-registration/) - Social Activities Sign Up Form Please enter the person with Down syndrome or other disability in the “Contact Information” section Thank you! We look forward to seeing you soon!
- [CONTACT](https://dsagsl.org/contact/) - Contact US Down Syndrome Association of Greater St. Louis 1201 Hanley Industrial Ct, Suite ABrentwood, MO 63144 Office HoursMonday – Friday, 8:30am – 4:30pm Phone: 314.961.2504Fax: 314.989.1579 Have a question? DSAGSL STAFF Erin Suelmann, Executive Directorerin@dsagsl.org Katie Adams,Grants Administratorkatie@dsagsl.org Makini Anwisye,Adult Services Coordinatormakini@dsagsl.org Abigail Beckord Bosslet,Community Engagement & Volunteer Managerabigail@dsagsl.org Emily Fisher,Director of Special Eventsemily@dsagsl.org
- [FAMILY SUPPORT](https://dsagsl.org/family-support/) - FAMILY SUPPORT
- [New and Expectant Parents](https://dsagsl.org/resources/new-and-expectant-parents/) - New & Expectant Parents Welcome New Members Expectant Parents New Parents Become a Member Comprehensive Website on Pregnancy and Down Syndrome Welcoming babies with Down syndrome Light at the End of the Tunnel New Grandparents Packet Parents, siblings, and people with Down syndrome report positive experiences Welcome New Members At the Down syndrome Association of
- [Sharing Our Strategies](https://dsagsl.org/sharing-our-strategies/) - Sharing Our Strategies Parent & Caregiver Support Groups Family Events Workshops Resources for Families and Caregivers Ages & Stages Resource Program Community Groups Sharing Our Strategies Facebook Page Sharing Our Strategies E-Newsletter Family Events Connect with other families at these great events for all ages and abilities! Bring mom, dad, siblings, grandparents… the whole gang
- [Host a Fundraiser](https://dsagsl.org/get-involved/host-fundraiser/) - Host a Fundraiser or Drive Year after year, the DSAGSL community steps up to support our programs and events through traditional fundraising, monetary donations, and volunteer time. It never ceases to amaze us just how generous and dedicated our supporters are. In addition to these vital contributions, our supporters have continued to come up with
- [About Down Syndrome](https://dsagsl.org/about/down-syndrome/) - About Down syndrome What is Down syndrome? How common is Down syndrome? What are the different types of Down syndrome? What causes Down syndrome? How is Down syndrome diagnosed? More information for new & expectant parents Current research Support resources Quick facts about Down syndrome Language guidelines What is Down syndrome? Down syndrome is a
- [DONATE](https://dsagsl.org/donation/) - Donate The Down Syndrome Association of Greater St. Louis relies on contributions from the community to sustain vital programs and services that benefit the lives of individuals with Down syndrome and their families in the Greater St. Louis area. Thank you for your gift! With your help, the Down syndrome Association of Greater St. Louis
- [FORMS](https://dsagsl.org/forms/) - FORMS
- [PROGRAMS](https://dsagsl.org/programs/) - PROGRAMS The Down Syndrome Association of Greater St. Louis is dedicated to being here for individuals with Down syndrome and their families, every step of the way. Through the small steps, next steps, and steps to independence, DSAGSL will be here with programs, services, and resources that benefit the lives of individuals with Down syndrome
- [Rock 21 Program Payment Form](https://dsagsl.org/forms/rock21-program-payment/) - Rock 21 Program Payment Form Please enter the Rock 21 Participant name in the “Contact Information” section. Thank you! We look forward to seeing you soon! Scholarship Form
- [DSAGSL Calendar](https://dsagsl.org/calendar/) - DSAGSL Events & Programs Calendar Edit Calendar November 2025 Mon Tue Wed Thu Fri Sat Sun 1 Hispanic Heritage: Dia de los Muertos Hispanic Heritage: Dia de los Muertos November 1, 2025 12:00 pm - 2:00 pm Down Syndrome Association of Greater St. Louis, 1201 Hanley Industrial Ct Suite A, Brentwood, MO 63144, USA ¡El Grupo
- [RESOURCES](https://dsagsl.org/resources/) - RESOURCES
- [Become a Member](https://dsagsl.org/signup/) - Become a Member For Parents, Guardians, and Caregivers For Extended Family Members For Education, Disability, and Healthcare Professionals For Non-Profit Organizations Click Here to Sign Up as a Volunteer Parents, guardians, and caregivers of individuals with Down syndrome Become a member of the Association and receive benefits such as resources specific to your child’s age
- [DSAGSL Blog](https://dsagsl.org/blog/) - DSAGSL Blog
- [ABOUT](https://dsagsl.org/about/) - ABOUT
- [Free Parent & Caregiver Event Form](https://dsagsl.org/forms/parents-caregivers/) - Parent & Caregiver Free Event RSVP Please enter the parent/caregiver/head of household in the “Contact Information” section. Thank you! We look forward to seeing you soon!
- [Scholarship Form](https://dsagsl.org/forms/scholarships/) - Scholarship Form The DSAGSL is committed to making our workshops accessible to all of our families! Please fill out the form and make sure to indicate which event, program, or workshop the scholarship is for. Thank you!
- [Vehicle Donation Program](https://dsagsl.org/vehicle-donation/) - Vehicle Donation Program Want to get rid of an old vehicle but don’t want to deal with selling it, fixing it, or junking it? Great news! You can donate it to DSAGSL! The donation process is safe and simple, and will benefit the lives of more than 1800 individuals with Down syndrome! If you have
- [Rosemarie Baumgartner Society](https://dsagsl.org/planned-giving/) - Rosemarie Baumgartner Society In 2010, the DSAGSL received a bequest, our first, from the estate of Joan Baumgartner. Made in honor of her sister with Down syndrome, Rosemarie, Joan’s gift ensure the future of the DSAGSL and the individuals we serve. We are honored to name our planned giving society after Rosemarie and her sister’s
- [Internships](https://dsagsl.org/get-involved/internships/) - Internships Internships with DSAGSL can provide professional skill building in special event management and fundraising, program management, and communications, all while working in the disability services field. Internship positions are typically on a semester long basis and available to students of all academic levels, colleges, universities, majors, and disciplines. Internship positions are unpaid, however, DSAGSL
- [Belonging Session Sign Up](https://dsagsl.org/events/belonging-session-signup/) - Belonging Portrait Session Sign Up In celebration of our 50th Anniversary the Down Syndrome Association of Greater St. Louis is expanding Belonging, by renowned photographer Randy Bacon. Our goal is to feature 50 faces to celebrate 50 years, and publish them all into a beautiful Belonging book that continues to share the powerful stories and
- [Belonging](https://dsagsl.org/events/belonging/) - Belonging Exhibit Belonging is a powerful collection of portraits and stories highlighting the beauty of human connection, the brilliance of unconditional love, and the universal need to belong. Through stunning photography and videography, the exhibit challenges societal stereotypes by showcasing the diverse personalities, passions, and vibrant lives of individuals with Down syndrome. Renowned photographer and
- [Support Groups](https://dsagsl.org/family-support/support-groups/) - Family Support Groups These family support groups are for parents, caregivers, and loved ones of individuals with Down syndrome experiencing additional challenges. Looking for support? Contact us! We are here to help Director of Family Support, Linda Kamphorst: linda@dsagsl.org or 314-833-8214 Regression Support Group Down syndrome regression disorder (DSRD), also referred to as regression, is
- [Couples Night Paid Event Form](https://dsagsl.org/forms/couples-night/) - Parents’ Night Out Form Please enter the parent/caregiver/head of household in the “Contact Information” section. Thank you! We look forward to seeing you soon! Scholarship Form
- [Rock 21 Concert](https://dsagsl.org/forms/rock-21-concert/) - Rock 21 Concert ARE YOU READY TO ROCK?!? Rock 21 is a dynamic music program designed for teens and adults with Down syndrome to explore their passion for music in a fun, supportive, and inclusive environment. Through group rehearsals, live performances, and engaging musical activities, participants build confidence, develop social connections, and enhance their musical
- [Dia de los Muertos](https://dsagsl.org/dia-de-los-muertos/) - Register / confirma su asistencia En Español In English
- [Boo at the Zoo](https://dsagsl.org/forms/boo-at-the-zoo/) - Boo at the Zoo Sign Up Form
- [Toilet Training Workshop Form](https://dsagsl.org/forms/toilet-training-workshop-form/) - Toilet Training Workshop Form Sip & Sit: A Toilet Training Workshop for Caregivers Friday, November 7th from 6:30-8:00pm DSAGSL Community Room 1201 Hanley Industrial Ct., Ste A | Brentwood, MO 63144 About the Workshop Toilet training is a major milestone for both children and families, but it doesn’t have to be stressful. In this class,
- [Feedback Sessions 2025](https://dsagsl.org/forms/feedback-sessions/) - Feedback Sessions 2025 Dear Family and Friends The mission of the Down Syndrome Association of Greater St. Louis is to serve, support, and celebrate the lives of all individuals with Down syndrome and their families, through every stage of life. As many of you know, this mission extends to families living all over Eastern
- [Small Steps Free Summer Program Form](https://dsagsl.org/forms/small-steps-free-summer-program-form/) - Small Steps Free Summer Registration Tuesday, July 22nd from 10am-12pm at DDRB Gym, 1025 Country Club Rd., St. Charles, MO 63303 or Wednesday, August 6th from 10am-12pm at the Leu Civic Center, 213 N Market St., Mascoutah, IL 62258 DSAGSL is hosting FREE Small Steps summer sessions in both St. Charles, MO and Collinsville, IL!
- [STL CITY2 Soccer](https://dsagsl.org/events/city2-soccer/) - CITY 2 Soccer – DSAGSL Night Sunday, July 27, 2025 at 6:00pm Down Syndrome Association of Greater St. Louis has partnered with STL CITY Soccer Club to set up a fundraising night at CITYPARK! Join family and friends as CITY2 continues their journey for the MLS Next Pro Cup. $5 from each ticket sold through
- [Gateway Grizzlies Abilities Night](https://dsagsl.org/events/grizzlies-night/) - Gateway Grizzlies Abilities Night Wednesday, July 9, 2025 at 6:30pm Grizzlies Ballpark, Sauget, IL Price: $16.50 – A Portion of Proceeds Comes Back to DSAGSL!! Join DSAGSL and other awesome organizations for Abilities Night with the Gateway Grizzlies!! Arrive early to walk the field before the game! (exact time TBD). Use our ticket link and
- [Ladies Night Event Form](https://dsagsl.org/forms/ladies-night-event-form/) - Moms Night Out: DIY Doormats Please enter the parent/caregiver/head of household in the “Contact Information” section. Thank you! We look forward to seeing you soon! Scholarship Form
- [Moms Day Out Paid Event Form](https://dsagsl.org/forms/moms-day-out/) - Moms Day Out : Dual Diagnosis Edition Please enter the parent/caregiver/head of household in the “Contact Information” section. Thank you! We look forward to seeing you soon! Scholarship Form
- [SEMO Volunteer Registration](https://dsagsl.org/forms/semo-volunteer-registration/) - SEMO Volunteer Registration Please fill out the form below to register to volunteer at an event or program happening in the Southeast Missouri region. Once registered, DSAGSL will contact you by email about 1 week before the event with details. In the Comments Box, please include any person or group you will be volunteering with, or
- [SEMO Cape Catfish Game](https://dsagsl.org/forms/semo-cape-catfish-game/) - Cape Catfish Baseball Game Ticket Form Wednesday, July 30, 2025 | Game starts at 6:35 | 77 South Plaza Way, Cape Girardeau, MO Join us on the Mercy Home Run Party Deck for a family friendly event watching the Cape Catfish take on REX Baseball. Food is provided, plus the Catfish players have a special surprise
- [SEMO Dads Day Paid Event Form](https://dsagsl.org/forms/semo-dads-day/) - Dads Day Event Form Please enter the parent/caregiver/head of household in the “Contact Information” section. Thank you! We look forward to seeing you soon! Scholarship Form
- [Super Bowl Squares Form](https://dsagsl.org/forms/football-squares/) - Super Bowl Squares Contest Payment Form Add some excitement to the big game and join our Super Bowl Squares Contest! Squares are just $10 and are randomly assigned to the board. There are 4 chances to win: 1st quarter: $100 | 2nd quarter: $100 | 3rd quarter: $100 | Final Score: $200 Thank you for your support and good
- [SEMO Special Needs Trust Workshop Form](https://dsagsl.org/forms/semo-trust-workshop/) - SEMO Special Needs Trust Workshop Form Saturday, March 15, 2025 from 10am-2pm at HubCo – 1427 Thomas Dr, Cape Girardeau, MO 63701 Financial Advisors Christine Ostendorf and Janet Renshaw from Thrivent Financial, and Leslie Quarles from the Institute on Community Inclusion will lead a free workshop on Special Needs Trusts for any family members who
- [Jeff Co Paid Event Form](https://dsagsl.org/forms/jeff-co-paid-event/) - Jefferson County Event Registration Thank you! We look forward to seeing you soon!
- [SEMO Fashion Show Tickets](https://dsagsl.org/forms/semo-fashion-show-tickets/) - Tickets for SEMO Fashion Show Please email Maria@dsagsl.org if you have a loved one with Down syndrome who would like to be a model in the fashion show! Thank you! We look forward to seeing you soon!
- [SEMO ED Specialist Registration Form](https://dsagsl.org/forms/semo-ed-specialist-registration-form/) - SEMO ED Specialist Registration Friday, November 1st from 9am-3pm 301 N Clark St., Cape Girardeau, MO 63701 | Upstairs Conference Room The Education Specialist program provides training and support to educators, parents, and professionals seeking to build a meaningful education for students with Down syndrome. The goal of the program is to provide individuals with Down syndrome
- [Infant & Toddler Massage Form](https://dsagsl.org/forms/infant-toddler-massage/) - Infant Toddler Massage Registration Saturday, November 9th from 10-11:15am at DSAGSL 1201 Hanley Industrial Ct. Suite A, Brentwood, MO 63144 Parents of children with Ds under the age of 5, let the DSAGSL & Baby & Me, LLC introduce you and your child to Infant Massage. There are many benefits related to infant massage including
- [Paid Family Event](https://dsagsl.org/forms/paid-family-event/) - Paid Family Event Registration Form Scholarships The DSAGSL is committed to making our workshops accessible to all of our families! If you are in need of a scholarship to attend this workshop, please fill out the form here. Registration Form
- [SEMO Free Event Registration](https://dsagsl.org/forms/semo-free-event-registration/) - SEMO Free Event Registration Please enter the parent/caregiver/head of household in the “Contact Information” section. In the “Comments” box, please enter the name of your loved one with Down syndrome. Thank you! We look forward to seeing you soon!
- [Event Form Template](https://dsagsl.org/forms/event-form-template/) - Event Name Registration Form Event Name Event Date and Time Event Location 232 S. Event details Scholarships The DSAGSL is committed to making our workshops accessible to all of our families! If you are in need of a scholarship to attend this workshop, please fill out the form here. Registration Form
- [Workshop Sign Up Form](https://dsagsl.org/forms/workshop-sign-up/) - Free Workshop Sign Up DSAGSL FREE WORKSHOP SIGN UP Please enter the parent/guardian as the “Contact Information” and be sure to choose the workshop name, month, and year from the drop down menu
- [Fusion Friday Payment Form](https://dsagsl.org/forms/fusion-friday-payment/) - Fusion Friday Payment Form Please enter the participant name in the “Contact Information” section. Classes are $5 each for in-person attendance. Zoom attendance is free. Choose from 10, 20, 30, or 40 class package. Participant with receive a “punch card” for number of classes purchased and will only pay for classes they attend. Thank you! We look

## My Templates

- [dsa-footer-main](https://dsagsl.org/?elementor_library=dsa-footer-main) - Enable JavaScript to ensure website accessibility Become a member today. It’s free and you will receive the DSAGSL e-news and other important information! Become a Member ABOUT About Down syndrome About DSAGSL Staff & Board of Directors Calendar Blog Newsletter Merch Become a Member Belonging Photography SUPPORT & RESOURCES New & Expectant Parents Workshops Family
- [sub-nav-buttons](https://dsagsl.org/?elementor_library=sub-nav-buttons) - CONTACT dONATE Volunteer
- [dsa-header-main](https://dsagsl.org/?elementor_library=dsa-header-main)
- [Default Kit](https://dsagsl.org/?elementor_library=default-kit-2)
- [Default Kit](https://dsagsl.org/?elementor_library=default-kit)
- [Program Volunteers](https://dsagsl.org/?elementor_library=program-volunteers) - Adult Program Volunteers – Rock 21 and Fusion Friday Tuesdays from 3:00-4:00 and Fridays from 9:15-1:15 & 1:30-3:30 at DSAGSL We are looking for a few key volunteers who can help us with our programming each week. Our Fusion Friday Program is Fridays from 9:15-1:15 and hosts around 40 individuals with Down syndrome. Volunteers would help
- [Buddy Up Fitness Volunteers](https://dsagsl.org/?elementor_library=buddy-up-fitness-volunteers) - Buddy Up Fitness Tuesdays starting 9/17 from 6-7pm at the DSAGSL Office in Brentwood (1201 Hanley Industrial Ct.) Thursdays starting 9/19 from 6:30-7:30 at Uncharted Cross Fit in St. Charles (991 Portwest Dr.) Buddy Up Fitness is a 60-minute, HITT style workout created for individuals with Down syndrome ages 12+ focused on developing core strength,

## Calendars

- [SEMO Programs & Events](https://dsagsl.org/calendar/semo-events-programs/) - [title] [when] [location] [description]
- [DSAGSL Calendar](https://dsagsl.org/calendar/dsagsl-calendar/) - [title] [when] [location] [description]
- [Test](https://dsagsl.org/calendar/test/) - [title] [when] [location] [description] [link newwindow="yes"]See more details[/link]

## Categories

- [Uncategorized](https://dsagsl.org/category/uncategorized/)

## Tags

- [mental health](https://dsagsl.org/tag/mental-health/)
- [down syndrome health](https://dsagsl.org/tag/down-syndrome-health/)
- [down syndrome](https://dsagsl.org/tag/down-syndrome/)
- [mental health disability](https://dsagsl.org/tag/mental-health-disability/)
- [disability health](https://dsagsl.org/tag/disability-health/)
- [covid mental healt](https://dsagsl.org/tag/covid-mental-healt/)